Preparing for a Child’s Hospital Discharge

Key Takeaways Discharge planning needs to be individualized.  Your child may need rehab for the physical, cognitive, and emotional consequences of surviving cardiac arrest. Some children require long-term hospitalization in a facility after cardiac arrest while others...

Long-Term Care Decisions

Key Takeaways Machines like ventilators and feeding tubes can affect the child’s life AND the whole family.  Your medical team should partner with you in making these decisions. They are the experts in medical care, and YOU are the expert in your child.  Loving...

Rehabilitation for the Pediatric Patient after Cardiac Arrest

Key Takeaways Rehabilitation can help children recover and get stronger after a cardiac arrest.  There are several types of therapy options available, depending on the needs of your child.  Involvement and participation in the different types of therapy may start...

A Guide for Pediatric Survivors Receiving a Defibrillator Device

Key Takeaways An ICD is a battery-powered device that can detect an abnormal heart rhythm and deliver a life-saving shock, if needed, to reset the abnormal heart rhythm. It is common to feel overwhelmed by all the new terminology and information related to a...

Explaining Cardiac Arrest to Children

Key Takeaways Be honest with your child. Tell them what you know and what you don’t know.  Don’t be afraid to show your child that you are sad and that expressing sadness by crying is okay and natural.  Make sure your child knows that they are not to blame. Take time...

Navigating Transitions Through Medical Care for Your Child

Key Takeaways Navigating transitions is complex and resources are available to help you. You do not need to take this on alone.  Always have a notebook and take notes. If you can have a support person attend meetings or appointments, this will help your...