Your loved one survived cardiac arrest. You are a co-survivor.
You experienced a sudden traumatic event—whether you witnessed your loved one’s cardiac arrest or were far away. You may feel unprepared in a sea of unknowns. Your focus is on the health of your loved one. At the same time, you may be struggling with your own emotions, stress, and extreme levels of responsibility. Heartsight can help with structured resources based on clinical research and the lived experiences of people like you. Heartsight is here to help you reduce the uncertainty throughout your own journey of healing.
Hindsight
What happened to my loved one? What happens in the hospital?
A cardiac arrest is a sudden life-threatening event. When it happens to someone you love, your life changes, too. From the first critical moments through each milestone of their hospitalization, you are their voice, advocate, and support. The content below will help you understand what happened, how treatment may progress, and how you can support their care.
5 Thing To Know
1. As your loved one comes out of a coma, speak slowly and gently to them about who and where they are and what is happening.
2. Be honest with your child about what you do and don’t know. Assure them they are not to blame.
3. Small actions of self-care, like journaling and creating a gratitude list, can make a big difference to your overall well-being.
4. Be receptive to offers of help from others. Keep a list of odd jobs and tasks you need help with.
5. Navigating transitions in you loved one’s hospital journey is difficult. Understanding the roles of different care team members and available resources may help.
Understanding Cardiac Arrest
Cardiac arrest is unique and represents the heart-brain connection
Things You Need to Learn About Your Hospital
How do I adjust to this unfamiliar place called a hospital?
Taking Care of Yourself While Caring for a Loved One
What does self-care mean?
Care in the Hospital
What to expect during hospitalization after cardiac arrest
The In-Hospital Care Team
Who might be involved in your loved one’s care?
The Intensive Care Unit
Catheters, machines, sounds, and teams… ICU 101
Protecting the Brain Immediately After Cardiac Arrest
Can we save the brain from more injury?
Understanding Neurological Prognostication
Heartbeat is back but my loved one is still not waking up… When will they?
Delirium During Hospitalization After Cardiac Arrest
Confused, aggressive, and restless… Is this expected?
My Loved One is Waking Up & I Feel Unprepared
How to tell my loved one what happened?
Speaking to Children About Life-Threatening Emergencies
What do I tell our children?
I Provided CPR to My Loved One
Did CPR help or hurt my loved one?
Understanding What You See & Hear During CPR
How do I understand what’s happening to my loved one during CPR?
Family Members’ Experience While Witnessing a Cardiac Arrest
I feel terrible and lost. Is that expected?
Accepting Help From Others
How and why should I accept help?
Navigating Transitions From the Event Through Hospital Care & Home
How do I make sense of these unfamiliar situations?
Insight
How do I prepare for hospital discharge?
Transitions bring new challenges and raise new questions. As you prepare for your loved one’s discharge to home or another care center, the information below will help empower you for your new responsibilities in the next phase of your loved one’s recovery.
5 Things To Know
1. Be CPR-ready. It should be a part of your hospital discharge plan, along with education on devices or medications.
2. Gather the hospital discharge summary, schedule of follow-up appointments, and future care details, including a safety plan for serious situations.
3. It is normal (and expected) for your loved one to experience new physical, emotional, and cognitive issues.
4. Discuss the rehabilitation needs of your loved one with the care team and advocate for them.
5. Check if your loved one needs a defibrillator. Your care team should provide counseling, links to the device company website, and a follow-up clinic appointment.
Preparing for Hospital Discharge
How to set up follow-up care
Rehabilitation After Cardiac Arrest
What is rehabilitation? Who is it for? Who qualifies?
A Guide for Survivors Receiving a Defibrillator
What is an ICD? Why do I need one?
Wearable Defibrillators
What are wearable defibrillators?
Changes After Cardiac Arrest
Your loved one survived cardiac arrest… Now what?
I Want to be CPR-Ready
Where do I get trained?
Helping Your Loved One Navigate the Healthcare System
How can I be an effective advocate for my loved one?
Foresight
What happens when my loved one goes home? What about my own recovery?
Your loved one is coming home! You celebrate how far they’ve come, yet you may feel apprehensive. What does life after cardiac arrest mean for you and your family? Initially, you may be the primary caregiver, helping your loved one to re-engage with friends, activities, and life. As you settle in you may find you are now ready to focus on your own recovery. You survived too. You are a co-survivor. This information will help you navigate your own journey of healing as you move forward.
5 Things To Know
1. Self-care is crucial. You do not need a serious psychological issue to benefit from counseling or therapy.
2. Connecting with your first responders to show gratitude can be healing, but only if you and your loved one are ready.
3. It’s always you and your loved one’s decision whether to go public with your story. Your story, your terms.
4. As your loved one gains independence, you also adjust your role from caregiver to champion to co-survivor and should prioritize self-care.
5. Communication between you and your loved one is key to recovering together and finding you new normal.
Understanding Cardiac Symptoms After Survival
Knowing when and how to take action
Understanding my Caregiving Role After my Partner’s Cardiac Arrest: A Co-Survivor’s Insight
What does it mean to be a co-survivor?
Navigating a New Normal in Your Relationship with Your Partner
Will our relationship ever go back to normal?
Bringing Home Your Child Who Survived Cardiac Arrest
How do I find a new normal for my child?
What Helped Me Heal: Perspective of a Co-Survivor & Mother
How do I cope and find balance?
Tips for Co-Survivors to Prevent Burnout & Caregiving Burnout
How do I avoid burnout?
When to Seek Professional Help
Perspective of a psychologist and mother of an ICU survivor
Resources to Support Your Psychological Needs
Where can I find additional resources on mental health?
Connecting with Your First Responders
How do I make that happen? And when is the right time?
Retracing Steps of Your Medical Journey
How and when do I arrange a “Hospital Care Tour”?
Managing Anniversary & Re-Birthday Anxiety
How do I navigate this emotional day?
Managing Media & Advocacy Requests for Your Story
How can I share my story on my own terms?
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